After a good day on Wednesday, Will's had a tough few days. Very tired, not saturating well, resting and sleeping a lot, feeling like crap. Seems a little more congested, at least to me.
Today I drove out to the next town over (it's not far) and picked up the machine for oximetry testing. It takes a continuous record of Will's oxygen saturation to see if he qualifies for home oxygen, at least for over night. Will does not want this; does not want any of it.
Tuesday he'll see his regular pulmonologist, to see if the bronchiolitis obliterans syndrome has stabilized, and what the options are from here.
Liam's world. . .
4 comments:
Thinking of you both. Hoping Will doesn't need the H20 either.
In my heart and mind, Elizabeth.
EB
I'm sorry Elizabeth! I hope that you have some time to rest this weekend.
Hugs,
Lisa
My thoughts are with you all. You have amazing strength! Love, Aunt Elaine
dear sweet Elizabeth,
damn it,
I don't want any of this for any of you either.
I hope that tuesday brings good news somehow and options that feel positive and right.
with love,
Kate
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