Friday, September 18, 2009

A day

After a good day on Wednesday, Will's had a tough few days. Very tired, not saturating well, resting and sleeping a lot, feeling like crap. Seems a little more congested, at least to me.

Today I drove out to the next town over (it's not far) and picked up the machine for oximetry testing. It takes a continuous record of Will's oxygen saturation to see if he qualifies for home oxygen, at least for over night. Will does not want this; does not want any of it.

Tuesday he'll see his regular pulmonologist, to see if the bronchiolitis obliterans syndrome has stabilized, and what the options are from here.

4 comments:

IVF 40+ said...

Thinking of you both. Hoping Will doesn't need the H20 either.
In my heart and mind, Elizabeth.
EB

Lisa said...

I'm sorry Elizabeth! I hope that you have some time to rest this weekend.

Hugs,

Lisa

elaine said...

My thoughts are with you all. You have amazing strength! Love, Aunt Elaine

mekate said...

dear sweet Elizabeth,
damn it,
I don't want any of this for any of you either.
I hope that tuesday brings good news somehow and options that feel positive and right.
with love,
Kate