Will's clinic appointment went okay on Monday. His lung function tests are a little bit up. They show his lung function to be about 48% of what is normally predicted for someone of his age and height. Not yet back to his baseline of 55% or thereabouts. Will's pulmonary doctor says that we won't know if this 48% is the new baseline for at least 6 months or so. He doesn't have any reason to suspect that this is a slow-speed-rejection-related "step off," but of course he can't rule it out and that is what it will be called if Will's lung functions don't recover. He advised increased activity and better nutrition, mainly. Also trying to get the depression/mood addressed better (maybe with a second opinion since it doesn't seem like the current approaches have been working) because this should help with activity. He said there's reason to hope that Will's lung functions will recover in time.
Will goes back to endocrinology on Monday to see if his para-thyroid and related levels have stabilized and to get some more testing to see if there's anything going on there contributing. Hopefully they'll see something fixable. It has been a pretty tough couple of months, and Will certainly feels crummy. He has been reading Denis Johnson again and told me the other day about a story about a double amputee who was in a nursing home but not because of the amputation, "he was there because of extreme sadness." I think Will can relate. (I think the Denis Johnson stories are amazing, but mostly unrelentingly sad. Also, I was really surprised not to find anything more interesting written about him to link to; you'd think there would have been lots of stuff from when he won the National Book Award, but. . .not.)
Today, though, was a pretty okay day for Will, I think. Did some things around the house with all the house projects. Went out to dinner with Liam and me and then to the park and for ice cream and running around after. So, we'll take that and call it good.