I started this (new, improved) blog after coming across and then becoming addicted to reading Confessions of a CF Husband. This is the story of a couple from North Carolina who are going through an amazing journey with stops along the way for: a very premature baby (who is now doing beautifully), a double-lung transplant, and now PTLD. When they posted about their PTLD, I realized how much families who are traveling these roads have in common and it made me want to put some of our experiences out there in case they can help anyone, in any way. So often it can make a difference just knowing that someone else has been there.
So, check it out: http://cfhusband.blogspot.com/