Sunday, May 31, 2009

Happy News!


Will just tested his lung functions on the home machine and he has bounced back to an FEV 1 of 2.25; up from the 1.8 or so where it's been hovering for at least the past month. This is really great news because it means that maybe with exercise and work he can recover all the way to his "old" baseline of 2.5 or 2.6 (which at his height, weight and age equates to about 50 - 55% of normal predicted lung function). Mostly though, however much further it comes back, if at all, it is really good news that it is not stuck down at 1.8, which means there probably hasn't been too, too much permanent damage, if any. (For me, this also quells the nagging fears of rejection which always accompany a significant loss in lung function.) So, we'll take all that and call it a good day. Will's theory is that the inhaled Colistin is more constricting than he realized and it was keeping his lung functions artificially low. (He went off the Colistin along with the other extra antibiotics on Tuesday.)

Photos are from last weekend. Liam's coffee table climbing adventures. We discourage this, but sometimes in the morning if I'm taking too long (i.e., more than 5 minutes) to fix my coffee, we will have an episode where Liam climbs on to the coffee table and then makes a racket until I walk in and tell him to "get down!".

1 comment:

IVF 40+ said...

that is great news! congrats to you both.