Liam is just now becoming old enough to look at books with paper pages instead of board books and be trusted to (mostly) not tear them. This is one of his current favorites and I really recommend it, the pictures are beautiful and it seems like all little kids are fascinated by birds.
In the picture you can also see Will's home IV medications (one hoked to the picc line and the other waiting by the computer). I didn't know Will before his transplant, but he tells me that home IVs are much easier now than they used to be as far as the equipment and all goes. No gravity drip. No mixing. Just hook it up to the line and away you go. You can also see Will's compressor for hypertonic saline treatment and other nebulized medications and the home sprirometry checker (on the bottom shelf).
Will's PFTs checked at the hospital were the same as what he has been measuring at home. Significantly down from what they were before this most recent illness. After 3 weeks on home IVs and nebulized Colistin, I know he is relieved for a break, and he feels okay because the IVs always really clear up his chronic sinus problems, but we're all pretty worried about his lung functions not bouncing back. He was at only about 55-60% lung function before this, so, there's really only so much room to maneuver. He will see the docs on June 8, so until then we just go on and hope things get better. If not, we can talk about whether there are any further treatment options to try to improve things, and, of course, what we might be able to do to prevent (or at least slow) any further decline.