We're home

Will was discharged from the hospital on Friday evening. About twelve days in this time. My parents braved rush hour traffic to go get him so I could pick Liam up at school, for which I am eternally grateful.

Will is still feeling really, really bad. He's on 4L oxygen continuously; this keeps his saturations in the mid 90s, except that they go down to the mid 80s pretty quickly with any activity. Grandpa DM helped me rig up the O2 tubing so I think it works okay. It's only 50 feet, so we move the oxygen concentrating machine and switch to a different set of tubing for when he goes upstairs. As we figure this all out more, I'm sure we'll get a better system. He is feeling crummy enough that he wants to just sleep a lot now.

It has been beautiful fall weather which we've been trying to enjoy. Fall is my favorite season, and I'm hoping to tap into a little bit of that if I can. Liam is on a play outside kick, and all he wants to do is "dig a big hole" (like Mollie the dog) and move the dirt around out of the garden bed, into the path, up onto the porch, etc. His hands turn to ice cubes and he has a complete fit when he is made to come indoors.

Last iv antibiotics tomorrow. Then it's just the oral antibiotics and the fluconazole for the cryptococcus infection. Unless things change a lot, we'll go to clinic probably a week from Monday and see what the doctors think. In the meantime, it's just rest and try to feel better.