So, for his 8-year transplant anniversary, Will received a diagnosis of chronic rejection and a picc line infection. He's in the hospital being treated with high-dose steroids for the rejection and iv antibiotics for the infection. We are hopeful that both treatments will work and that his lung functions will stabilize and potentially rebound somewhat assuming that at least some of the decline is infection-related. The rejection-related losses are permanent.
The kind of rejection Will has is called bronchiolitus obliterans syndrome and it is basically an immune-injury/inflammation-related response that causes fibrosis and obstruction of the small airways. It's a rough diagnosis to receive and we're all still just trying to figure out what to do with ourselves.
5 comments:
Dear Elizabeth. So sorry to hear the crappy diagnosis. I wish you both all my love.
thinking of you
EB
I'm so sorry Will and you are going through this. I'm hoping and praying the doctors are able to help him through this.
Elizabeth,
I am SO sorry to hear this! Is there anything that we can do? Please remember that we are only 7 miles from the hospital and are happy to bring by food or do anything else that will help. For now, I am sending positive and healthy vibes your way. Take care!
Lisa
Oh sweetie pie, this sucks rocks, big rocks, big barnacle covered rocks with slime actually.
So- damn it. I was hoping for something a whole lot more simple than this for you both.
I will be praying to whatever gods might be listening-
and just hope for as full and swift a recovery as reality allows.
I will be thinking of you Elizabeth, and wishing that wishing were truly magical.
sending big gentle hopeful love,
Kate
Sending love,
each and every moment.
thinking of you,
XOX
Kate
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