Will is home. He was discharged today. He didn't have any results of the bronchoscopy to share. The level of CMV in his blood is "very low." He is saturating in the mid 90s on room air. He goes back on Friday for a colonoscopy to evaluate for CMV colitis. That's all we know.
It's very good to have him home, even as it is distressing to see him still short of breath and still having trouble with his digestion, and not have a clearer theory of what might be going on or (even better) a good path forward for treatment. Hopefully Friday's testing and followup from that plus quick followup with Will's regular pulmonary doctor will give us a better sense of what to expect.
In the meantime, we're very happy he seems to be stable and is home to sleep in his own bed without all the constant hospital interruptions!
Liam's world. . .
2 comments:
YEY! That is great news indeed. I hope you get the answers you need this week and Will's breathing eases.
All the very best to you all.
EB
I am so glad he is home!
and your neighbors simply rock.
Hoping each appointment brings answers that can be addressed so Will can feel (and be) better and better.
Glad the CMV is not raging, I know it can knock the wind out of your sails.
sending love,
Kate
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